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CTMQ > Family > The Boys

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Family

Damian in the News

September 21, 2011 by Steve 1 Comment

In September of 2011, we hosted the first SMSRF fundraiser in Canton, CT. Ramping up to the event, we did some press and got a couple nice stories out there about SMS. Here they are: Kim Velsey's story in the Courant about SMS and Damian. This article ran in the town papers all over central CT which had a … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Smith-Magenis Syndrome

Calvin

April 26, 2011 by Steve 6 Comments

April 2011 We went and did it. We had another kid! Calvin Dán was born healthy and hale in April 2011. Hoang did great throughout the process it went much quicker than Damian – despite Calvin being almost a pound and a half bigger. I sat here a while wondering for a while what I’d write about regarding this new … [Read more...]

Filed Under: Family, The Boys Tagged With: Calvin, Damian, Family Chronicles

Family

April 25, 2011 by Steve 15 Comments

Our Boys April 2011 Our lives just got 50% more complicated. And wonderful. With baby Calvin entering the world in April 2011, we have entered the world of multiple children. Actually, our journey with Calvin began years ago – in a way. In an odd twist of irony, Damian was an easy baby. Quiet and compliant; we … [Read more...]

Filed Under: Family, The Boys Tagged With: Calvin, Damian, Family Chronicles

August 2010 Update

August 17, 2010 by Steve 12 Comments

Those few of you in my inner circle know how I write pages for CTMQ. I think about what I’m going to write maybe in the car or shower, gather any materials or websites I’ll reference, sit down and type fast. I write them very quickly; never really proofreading or stopping along the way. I may wait a day or two (or … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Smith-Magenis Syndrome

Essay: It Just Tears Me Up

August 8, 2010 by Steve 3 Comments

Note: I wrote this essay way back in January 2009, pretty much just for the heck of it. I submitted it to Newsweek but only received a "Thanks, but we're changing the format of "My Turn." Good luck." I never did anything with it and totally forgot about it until about 20 minutes ago because I've been feeling guilty … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Blog, Damian, Smith-Magenis Syndrome

April 2009 Update

April 30, 2009 by Steve 12 Comments

Damian Update I have the ability to see where and infer why people come to this blog from various search engines. If I'm in the mood, I can check things like how much time those readers spend on each page. One page that gets a lot of traffic is my page about Damian... Much of it comes from people searching for … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Family Chronicles, Smith-Magenis Syndrome

Damian

September 2, 2008 by Steve 23 Comments

I figured it would be prudent to write a little blurb about my son, Damian, and some of the special challenges Hoang and I face raising him. I have hinted throughout CTMQ that he's a little bit different from other kids his age which has prompted some emailed questions. "Why don't you take him to this or that … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Family Chronicles, Smith-Magenis Syndrome

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