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CTMQ > Family

Family

15 Comments

Family

Our Boys April 2011 Our lives just got 50% more complicated. And wonderful. With baby Calvin entering the world in April 2011, we have entered the world of multiple children. Actually, our journey with Calvin began years ago – in a way. In an odd twist of irony, Damian was an easy baby. Quiet and compliant; we … [Read more...]

Filed Under: Family, The Boys Tagged With: Calvin, Damian, Family Chronicles

CT Hops for Hope is Back!

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CT Hops for Hope is Back!

Hoping... Saturday September 2nd at Falcon Field New Britain, Connecticut CT Hops for Hope Buy Tickets! Donate! When I started CTMQ almost 11 years ago, I really had no clue as to what it would become. I just liked writing, traveling, and learning weird stuff about the local places we all take for granted. … [Read more...]

Filed Under: New Post, Non-CT, Smith-Magenis Syndrome Tagged With: Damian, Smith-Magenis Syndrome

The Best Way I Know How to Say…

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The Best Way I Know How to Say…

... Thank You and Goodbye Have you ever had dozens of people to thank but find the process of thanking them all a bit daunting? That's the position my wife and I are in today. Fortunately, I have this platform on which to do my best. And even though I'm going to try my best, it's still not going to be nearly good … [Read more...]

Filed Under: Family, New Post, Non-CT, Smith-Magenis Syndrome Tagged With: Blog, Calvin, Damian, Family Chronicles, Hoang, Smith-Magenis Syndrome

TSTL’15.9: Macedonia Brook State Park

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TSTL’15.9: Macedonia Brook State Park

The Sky's the Limit 2015 Hiking Challenge #9 Macedonia Brook State Park/Cobble Mountain Kent, June 25, 2015 2019 Update: This page is so bittersweet for me. I LOVE this page so much and swell with pride reading it and looking at the pictures. But now, as Damian enters his teen years, these things just don't, … [Read more...]

Filed Under: Hikes, Bikes & Paddles, Hiking Challenges, New Post, Smith-Magenis Syndrome, State Parks & Forests Tagged With: Damian, Great Views, Hikes with my Boys, Kent, Litchfield County, Macedonia Brook state park, Sky's the Limit Challenge, Smith-Magenis Syndrome

CTMQ NYT SRSLY?

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CTMQ NYT SRSLY?

Yeah, SRSLY. And don't give me any of that TL;DR stuff either. Check it out. I must admit, this was pretty cool. … [Read more...]

Filed Under: New Post, Non-CT, Press, Smith-Magenis Syndrome Tagged With: Press, Smith-Magenis Syndrome

Damian in the News

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Damian in the News

In September of 2011, we hosted the first SMSRF fundraiser in Canton, CT. Ramping up to the event, we did some press and got a couple nice stories out there about SMS. Here they are: Kim Velsey's story in the Courant about SMS and Damian. This article ran in the town papers all over central CT which had a … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Smith-Magenis Syndrome

SMS Resources

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SMS Resources

So, you're wondering, how can you help the SMS community? Easy. You can poke around these Damian pages and click on a few links and learn about one of the many rare chromosomal syndromes that exist. (Hey, since MY kid has SMS, that’s the one I happen to care/know about the most.) Also, you can talk to your friends … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome Tagged With: Smith-Magenis Syndrome

Calvin

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Calvin

April 2011 We went and did it. We had another kid! Calvin Dán was born healthy and hale in April 2011. Hoang did great throughout the process it went much quicker than Damian – despite Calvin being almost a pound and a half bigger. I sat here a while wondering for a while what I’d write about regarding this new … [Read more...]

Filed Under: Family, The Boys Tagged With: Calvin, Damian, Family Chronicles

August 2010 Update

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August 2010 Update

Those few of you in my inner circle know how I write pages for CTMQ. I think about what I’m going to write maybe in the car or shower, gather any materials or websites I’ll reference, sit down and type fast. I write them very quickly; never really proofreading or stopping along the way. I may wait a day or two (or … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Smith-Magenis Syndrome

Essay: It Just Tears Me Up

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Essay: It Just Tears Me Up

Note: I wrote this essay way back in January 2009, pretty much just for the heck of it. I submitted it to Newsweek but only received a "Thanks, but we're changing the format of "My Turn." Good luck." I never did anything with it and totally forgot about it until about 20 minutes ago because I've been feeling guilty … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Blog, Damian, Smith-Magenis Syndrome

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