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CTMQ > Smith-Magenis Syndrome

Prospector Theater

July 8, 2017 by Steve Leave a Comment

This Place is Gold! Prospector Theater, Ridgefield June 2016 & 2017 What could possibly make me and my family drive all the way out to the center of bustling Ridgefield for a kid's movie? Two years in a row? A Smith-Magenis Syndrome Research Foundation fundraiser of course! Why would the SMSRF have a … [Read more...]

Filed Under: Everything Else, Houses, Communities, Libraries, & Businesses, New Post Tagged With: Calvin, Damian, Hoang, Other Companies and Businesses, Ridgefield, Smith-Magenis Syndrome

CT Hops for Hope is Back!

July 6, 2017 by Steve 5 Comments

Hoping... Saturday September 2nd at Falcon Field New Britain, Connecticut CT Hops for Hope Buy Tickets! Donate! When I started CTMQ almost 11 years ago, I really had no clue as to what it would become. I just liked writing, traveling, and learning weird stuff about the local places we all take for granted. … [Read more...]

Filed Under: New Post, Non-CT, Smith-Magenis Syndrome Tagged With: Damian, Smith-Magenis Syndrome

The Best Way I Know How to Say…

June 10, 2016 by Steve 3 Comments

... Thank You and Goodbye Have you ever had dozens of people to thank but find the process of thanking them all a bit daunting? That's the position my wife and I are in today. Fortunately, I have this platform on which to do my best. And even though I'm going to try my best, it's still not going to be nearly good … [Read more...]

Filed Under: Family, New Post, Non-CT, Smith-Magenis Syndrome Tagged With: Blog, Calvin, Damian, Family Chronicles, Hoang, Smith-Magenis Syndrome

TSTL’15.9: Macedonia Brook State Park

September 8, 2015 by Steve 2 Comments

The Sky's the Limit 2015 Hiking Challenge #9 Macedonia Brook State Park/Cobble Mountain Kent, June 25, 2015 2019 Update: This page is so bittersweet for me. I LOVE this page so much and swell with pride reading it and looking at the pictures. But now, as Damian enters his teen years, these things just don't, … [Read more...]

Filed Under: Hikes, Bikes & Paddles, Hiking Challenges, New Post, Smith-Magenis Syndrome, State Parks, Reserves, Preserves, Forests, NAPs, WMAs, & Campsites Tagged With: Damian, Great Views, Hikes with my Boys, Kent, Macedonia Brook state park, Sky's the Limit Challenge, Smith-Magenis Syndrome

CTMQ NYT SRSLY?

August 14, 2015 by Steve Leave a Comment

Yeah, SRSLY. And don't give me any of that TL;DR stuff either. Check it out. I must admit, this was pretty cool. … [Read more...]

Filed Under: New Post, Non-CT, Press, Smith-Magenis Syndrome Tagged With: Press, Smith-Magenis Syndrome

CT Hops for Hope Brewfest!

August 4, 2015 by Steve Leave a Comment

There are a lot of good things going on in CTMQ-land in 2015. This here brand new site redesign, talks with publishing houses, some good press, my 300th CT museum visit... But all those things combined pale in comparison to my involvement with the inaugural Connecticut Hops for Hope Brewfest. I am proud to be closely … [Read more...]

Filed Under: Non-CT Tagged With: Blog, Smith-Magenis Syndrome

Extreme CT Geo-Tour 2012

June 20, 2012 by Steve 7 Comments

This is Happening Happened August 4, 2012 In 2011, we put together our first fundraiser for the Smith-Magenis Research Foundation. One of the items up for auction was spending an entire day with me trying to hit all of Connecticut's extreme geographic points. Seriously. TWO guys (neither from Connecticut!) … [Read more...]

Filed Under: Everything Else, Geography Tagged With: Blog, geo-oddities, Geographic Extremes, Geography, Smith-Magenis Syndrome

Damian in the News

September 21, 2011 by Steve 1 Comment

In September of 2011, we hosted the first SMSRF fundraiser in Canton, CT. Ramping up to the event, we did some press and got a couple nice stories out there about SMS. Here they are: Kim Velsey's story in the Courant about SMS and Damian. This article ran in the town papers all over central CT which had a … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome, The Boys Tagged With: Damian, Smith-Magenis Syndrome

Camp Harkness State Park

June 27, 2011 by Steve 16 Comments

Camp Harkness State Park Waterford Everyone’s always asking me what my favorite [insert anything I ever write about] is. I pretty much never answer because quite frankly, I don’t have an answer for them. But when it comes to “what’s your favorite Connecticut State park,” I now have an answer. And with … [Read more...]

Filed Under: Everything Else, State Parks, Reserves, Preserves, Forests, NAPs, WMAs, & Campsites Tagged With: Calvin, Damian, Hoang, Smith-Magenis Syndrome, Swimming, Waterford

SMS Resources

April 29, 2011 by Steve Leave a Comment

So, you're wondering, how can you help the SMS community? Easy. You can poke around these Damian pages and click on a few links and learn about one of the many rare chromosomal syndromes that exist. (Hey, since MY kid has SMS, that’s the one I happen to care/know about the most.) Also, you can talk to your friends … [Read more...]

Filed Under: Family, Smith-Magenis Syndrome Tagged With: Smith-Magenis Syndrome

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